Archived posting to the Leica Users Group, 2014/12/26

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Subject: [Leica] Health
From: topoxforddoc at btinternet.com (Charlie Chan)
Date: Fri, 26 Dec 2014 11:57:04 +0000
References: <31567020.1419591000022.JavaMail.root@elwamui-rubis.atl.sa.earthlink.net>

Dear Herb and Ken,

May 2015 bring you some respite from your ailments.

Ken, 

there are some non chemotherapy drugs available for renal cell cancer, such 
as sunitinib (Sutent)
http://www.nice.org.uk/guidance/ta169
and pazopanib
http://www.nice.org.uk/guidance/ta215
Biological therapies don?t tend to make people ill and have much fewer side 
effects than cytotoxic chemotherapy. They aren?t cheap though.

Herb,

Many people with prostate cancer go on for years. If the disease is 
endocrine responsive, then there are lots of relatively non-toxic treatments 
available. So, don?t give up on getting to 100 yet!

Best wishes,

Charlie
www.charlie-chan.co.uk


On 26 Dec 2014, at 10:49, Montie <montoid at earthlink.net> wrote:

> +1
> 
> Montie
> 
> This exchange really puts things in perspective for me. All the best to 
> both 
> Herbert and Ken. You guys are strong.
> 
> Cheers,
> Nathan
> 
> Nathan Wajsman
> 
> 
> On 26 Dec 2014, at 01:40, Ken Carney <kcarney1 at cox.net> wrote:
> 
>> Herbert,
>> 
>> Hang in there.  I am 20 years younger and have had surgery now for kidney 
>> cancer, colon cancer and pancreatic cancer.  Actually, the pancreas 
>> surgery last year showed renal cell carcinoma there, no doubt having met 
>> there from the kidney cancer 15 years earlier.  I am advised it is 
>> possible that there is still RCC somewhere, but that there is no 
>> effective 
>> therapy (chemo).  So, I do what I always do and take things a day at a 
>> time.  I truly hope you get better news and have the best possible 
>> outcome.  Unpleasant stuff, this.
>> 
>> Ken
>> Whose mother-in-law has survived more bullets than I can count and is 
>> having her 100th birthday party Sunday.  We got her a Samsung Galaxy 
>> tablet and extended warranty.
>> 
>> On 12/25/2014 6:04 PM, Herbert Kanner wrote:
>>> Since everyone regards LUG as family and reports their health issues, 
>>> I?ll throw mine in. This won?t be real short, because the details are 
>>> interesting.
>>> 
>>> In 2001, my PSA jumped and I had the uncomfortable needle biopsy via 
>>> ass-hole. Of nine needles, one picked up a couple of millimeters of 
>>> malign cells which were pronounced to be aggressive. I then had many 
>>> sessions of what is misnamed ?Intensity modulated radiation therapy?. 
>>> Actually what happens is the source of the radiation rotates in a 
>>> vertical plane around the patient and during the rotation, the shape of 
>>> the beam is modulated by a diaphragm of tungsten fingers so as to always 
>>> concentrate the radiation on the desired site. One time, I was really 
>>> scared because the treatment was delated due to a computer crash, and 
>>> when I asked what the computer program was housed in, they said Windows 
>>> 2000.
>>> 
>>> Every year since, my PSA was checked and my prostate poked by the 
>>> radiation oncologist.
>>> 
>>> A couple of months ago, I felt a sore muscle in my left thigh; I just 
>>> thought it was a pulled muscle, and Naproxen relieved it. But just one 
>>> day, it was so sever that I was limping, so I thought it would be a good 
>>> idea to go to my primary care quack and check it out. When she pulled my 
>>> leg outward, I yelled ?ouch? and she ordered a hip X-ray to be done on 
>>> my 
>>> way out.
>>> 
>>> By the time I got home, there was a frightful message on my answering 
>>> machine. I was to go asap to the Stanford Hospital site in a neighboring 
>>> city (Redwood City) where an appointment had been set up for a CAT scan. 
>>> Then I was to drive straight to the Main Hospital at Stanford (Palo 
>>> Alto) 
>>> and see the same radiation oncologist. Also they were setting up an 
>>> appointment, probably for the next day, for a radioactive bone scan.
>>> 
>>> The radiation oncologist showed me the X-rays and Cat scans on his 
>>> computer screen. First there was a large lesion on my left femur. Then 
>>> there was a bunch of little dots in my lungs that were not there two 
>>> years ago. I said I was appalled. He said he was appalled. He then 
>>> opined 
>>> that my hip was about to break, that he checked that an orthopedic 
>>> surgeon was available on or immediately after the weekend, and that the 
>>> quickest way to get admitted to the hospital was via the emergency room. 
>>> He had his resident wheel me there.
>>> 
>>> Well, on the way in, the rent-a-cop confiscated my Swiss army knife, and 
>>> when it was apparent with a packed ER that I?d be there for a while, I 
>>> got around to phoning my wife. They were so packed that I had to wait 
>>> until there was a free bed.
>>> 
>>> After the routine things, mainly a blood draw, an orthopedic guy showed 
>>> up. He said that there was no danger of a fracture, that I should go 
>>> home 
>>> and have a normal weekend, and that an appointment had been made to see 
>>> an orthopedic surgeon on the following Tuesday. I guess it was probably 
>>> thirty years since the radiation oncologist had learned to interpret 
>>> that 
>>> sort of X-ray.
>>> 
>>> On that day, my wife went along for moral support. Interestingly enough, 
>>> all three of us in the room had something in common: doctorates from the 
>>> University of Chicago, mine in physics, Lee?s in biochemistry, and the 
>>> surgeon whatever real doctors get. The latter spent most of the 
>>> forty-five minutes teaching me how to read the X-ray, primarily why it 
>>> showed that there was no current risk of a fracture. When I inquired 
>>> about either surgical support of the bone or just drilling to get a 
>>> sample for a biopsy, he said that the risks outweighed the benefits. He 
>>> said it was probably metastatic prostate cancer, slow-growing, and 
>>> tending to deposit bone. Next appointment in a month with immediately 
>>> preceding X-ray to assess fracture risk.
>>> 
>>> I finally got to see a medical oncologist. She indicated that this kind 
>>> of cancer without PSA rising is very rare, but does happen. She felt 
>>> that 
>>> we had to know what we were dealing with, and if the surgeon reported 
>>> that there was no way to get a sample with a needle, she was going to 
>>> make the assumption that those dots on my lungs were not an infection 
>>> residue but were the same tumor, and one of them was very accessible to 
>>> a 
>>> cat scan guided needle.
>>> 
>>> I?m waiting for that and will keep you posted. I?ll be 93 in June. I 
>>> doubt that I?ll make 100.
>>> 
>>> Herb
> 
> 
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Replies: Reply from philippe.amard at sfr.fr (Philippe) ([Leica] Health)
In reply to: Message from montoid at earthlink.net (Montie) ([Leica] Health)